In January 2012, at the age of just 20 months, my son Ethan was diagnosed with ependymoma,
an aggressive form of childhood brain cancer.
Ethan’s diagnosis has had a devastating impact on me and my family – not
to mention on my little boy. Ethan has endured several surgeries, chemotherapy and radiation
therapy. He has had to learn to sit, crawl, walk and eat a second time over. In addition, Ethan
faces long-term developmental side effects from his treatment.
As I watch Ethan face each of his many challenges with unwavering determination, I do so
knowing that his cancer may recur at any time.
I now know that brain cancer is the greatest non-accidental killer of children in Australia.
I feel that positives can come out misfortune. In partnership with the Telethon Institute for Child Health Research, my wife Christie-Lee and I established the Ethan
Davies Scholarship for Brain Cancer Research.
Ethan’s Scholarship supports childhood brain cancer research by a doctor – a trainee
neurosurgeon – in the Telethon Institute’s brain cancer laboratory, with a particular focus on
ependymoma. It is awarded annually.
With your support, we hope to accelerate the development and introduction of new and improved treatments to prevent and better treat this devastating cause of illness in children.